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2019 Lafora Disease Spotlight – Thomas

December 4, 2019/by Alan Barter

The following video was presented at the 5th International Lafora Epilepsy Workshop in Madrid: Chelsea’s Hope Lafora Disease Spotlight

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Alan Barter https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Alan Barter2019-12-04 07:56:592019-12-04 09:19:132019 Lafora Disease Spotlight – Thomas

Lafora Documentary to Be Shown at San Francisco Film Festival

October 11, 2019/by Frank Harris

Disorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of the films are documentaries. Many are less than 15 minutes. This year’s festival, scheduled for November 9th and 10th, will include Faces of Lafora, a documentary film by Denis Bojic. Faces of Lafora illustrates the heartbreaking impact that Lafora Disease has on patients and their families, as well as the efforts to find a cure for this horrible disease. Read more

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Frank Harris https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Frank Harris2019-10-11 18:07:222023-02-14 07:50:38Lafora Documentary to Be Shown at San Francisco Film Festival

Summary of 2019 Lafora Workshop

September 23, 2019/by Frank Harris

Summary of 2019 Lafora Workshop

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Frank Harris https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Frank Harris2019-09-23 21:47:432019-09-23 21:59:06Summary of 2019 Lafora Workshop

5th International Lafora Disease Workshop

August 9, 2019/by Alan Barter

The 5th International Lafora Disease Workshop is scheduled for September 9-11, 2019 in Alcala Spain.

Please see attached for additional details.

2019 LD workshop

https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Alan Barter https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Alan Barter2019-08-09 12:53:542019-08-09 13:06:455th International Lafora Disease Workshop
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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

Donate to Lafora Research

Latest News

  • Social Security Added Lafora to Compassionate Allowances List

  • Elpida Therapeutics’ Press Release

  • ION283 to be Developed by Elpida Therapeutics

  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

  • Meet our 2026 Summer Interns!

  • Updates for the Lafora Therapy Pipeline: Requesting information from our Research Community

  • Telethon’s Statement on the ION283 Clinical Trial Pathway for Lafora

  • 2025 Annual Report

  • Telethon’s Update on the ION283 Clinical Trial Pathway for Lafora Disease

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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