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Lafora Documentary to Be Shown at San Francisco Film Festival

October 11, 2019/by Frank Harris

Disorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of the films are documentaries. Many are less than 15 minutes. This year’s festival, scheduled for November 9th and 10th, will include Faces of Lafora, a documentary film by Denis Bojic. Faces of Lafora illustrates the heartbreaking impact that Lafora Disease has on patients and their families, as well as the efforts to find a cure for this horrible disease.

Between some of the slates of films rare disease researchers and patient advocates will also share stories from their experience. Frank Harris, President of Chelsea’s Hope, will be present to answer questions about Lafora Disease and discuss the current state of the research.

Festival organizers believe increased awareness can connect patient families, inspire conversations about translation applications of current science, lead to new paths for research and save lives. Chelsea’s Hope agrees that increased awareness can connect families and inspire work toward a cure for Lafora Disease.

You can watch Faces of Lafora on YouTube.

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https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Frank Harris https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Frank Harris2019-10-11 18:07:222023-02-14 07:50:38Lafora Documentary to Be Shown at San Francisco Film Festival
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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

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The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

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Use ICD-10 code G40.C for Lafora.

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