Disorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of the films are documentaries. Many are less than 15 minutes. This year’s festival, scheduled for November 9th and 10th, will include Faces of Lafora, a documentary film by Denis Bojic. Faces of Lafora illustrates the heartbreaking impact that Lafora Disease has on patients and their families, as well as the efforts to find a cure for this horrible disease.
Between some of the slates of films rare disease researchers and patient advocates will also share stories from their experience. Frank Harris, President of Chelsea’s Hope, will be present to answer questions about Lafora Disease and discuss the current state of the research.
Festival organizers believe increased awareness can connect patient families, inspire conversations about translation applications of current science, lead to new paths for research and save lives. Chelsea’s Hope agrees that increased awareness can connect families and inspire work toward a cure for Lafora Disease.
You can find more information about the schedule and tickets for Disorder: The Rare Disease Film Festival, here.