Christine Kelly, Author at Chelsea's Hope Lafora Children Research Fund

About Christine Kelly

Christine joined Chelsea's Hope in June 2022 as a Marketing Fellow. In her current role as Communications and Development Director, she manages social media, the monthly newsletter, and the volunteer program. Christine also updates the website and would love to connect with you about sharing your story.

Entries by Christine Kelly

Announcing ICD-10 Codes for Lafora Disease

September 22, 2023/by Christine Kelly

We are thrilled to announce that newly designated, unique ICD-10 Diagnostic Codes for Lafora Disease will be effective on October 1, 2023. Lafora progressive myoclonus epilepsy, or Lafora Disease, an ultra-rare neurodegenerative disorder affecting children, has been assigned code G40.C, falling under the G category of diseases representing nervous system disorders. This development marks a […]

Interested in a Sibling Support Group?

September 13, 2023/by Christine Kelly

Lafora Disease Therapeutic Overview

September 8, 2023/by Christine Kelly

Childhood Dementia Webinars

August 23, 2023/by Christine Kelly

Our friends at Childhood Dementia Initiative are hosting three childhood dementia webinars we want to let you know about! 1. Childhood Dementia Introduction Tuesday, 5th September 2023 from 10:30 – 11:30 pm EST 2. Accessing Emerging Treatments for Childhood Dementia Thursday, 7th September from 6 – 6:45 pm EST 3. We Don’t Fit Report Tuesday, […]