Entries by Christine Kelly

Chelsea’s Hope Announces Launch of Advisory Board

As announced during our 15-year celebratory dinner, Chelsea’s Hope is pleased to share the launch of our Advisory Board. Chelsea’s Hope has a dedicated Board of Directors, staff, and volunteers who work to execute our mission. To accelerate our path to treatment and expand our capacity to serve families with Lafora, the Board nominated 11 […]

Announcing a Q&A Session about Family Support for the Safety Study

We are excited to announce a Q&A Session on Zoom about family support for the Safety Study this coming Monday, October 14th, at 10 am ET. Dr. Souad Messahel will join us to answer families’ questions about visas, travel insurance, health insurance, and accommodations for patients accepted into the safety study. During the meeting, Dr. […]