About Christine Kelly
Christine joined Chelsea's Hope in June 2022 as a Marketing Fellow. In her current role as Communications and Development Director, she manages social media, the monthly newsletter, and the volunteer program. Christine also updates the website and would love to connect with you about sharing your story.
Entries by Christine Kelly
2023 Symposium Registration is Open Now!
/by Christine KellyWe are delighted to announce that the 2023 Symposium registration is open now. Please join us October 9-10, 2023, in the beautiful and historic city of Bologna. Lafora disease researchers and clinicians at the Instituto delle Scienze Neurologiche di Bologna IRCCS will host the 8th Annual Lafora Disease Science Symposium at the Relais Bellaria. You can […]
Probably Genetic Program: FAQs
/by Christine KellyFAQs about Probably Genetic’s no-cost genetic testing program for pediatric epilepsy Who is Probably Genetic? Probably Genetic is a group of patients, geneticists, and engineers that seek to make genetic testing more accessible to rare disease patients. Their team partners with patient advocacy groups, such as Chelsea’s Hope, and biotech companies to launch no-cost genetic […]
Probably Genetic Partnership Announcement
/by Christine KellyChelsea’s Hope partners with Probably Genetic to identify Lafora disease patients Chelsea’s Hope Lafora Children Research Fund is excited to announce our new collaboration with Probably Genetic as a patient-finding partner for our community. If you or anyone you know is looking for a trusted genetic testing resource, Probably Genetic runs a no-cost, low barrier […]
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834