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Lafora Body Disease Day & Awareness Month – October 1st

September 28, 2021/by Niki Markou

It’s our first year acknowledging a day for Lafora disease and October 1st is the day.

Lafora Body Disease Day – October 1st

Lafora Body Disease Day

Our mission is;

Creating Awareness – Connecting Families – Funding Research – Maintaining Hope

Our goal is to raise awareness and much needed funding to continue the research and turn them into therapies. We have done so much in recent years and we are almost there….hope is closer than it ever has been before!

We are dedicating the whole month to creating awareness by asking for help from all of you to ensure we reach our goals!

So please join us for Lafora Body Disease Awareness Month!

Lafora Body Disease Awareness Month

Week 1 – Fri  1st October
Message 15 of your friends to set their #AmazonSmile charity as Chelsea’s Hope Lafora Children Research Fund or ask them to donate $20!
Tag us in your posts or hashtag #laforabodydiseaseday #AmazonSmile #EpilepsyFoundation

Week 2 – Fri 8th October
Create an event – Host a special night, invite your friends and ask for a $20 donation.
Tag us in your posts or hashtag #laforabodydiseaseday #laforamovienight or #laforagamesnight or #laforadrinksnight #EpilepsyFoundation

Week 3 – Fri 15th October
“Challenge Your Friends Week”
Do the #OneChipChallenge or #CandyJarChallenge guessing competition and ask for $20 donations or nominate 3 friends to challenge you and pay $20.
Tag us in your posts or hashtag #laforabodydiseaseday #onechipchallenge #candyjarchallenge #EpilepsyFoundation

Week 4– Fri 22nd October

Wear purple lipstick, tag us in your posts and nominate 3 people to donate $20
Hashtag #purplelipsforacure #laforabodydiseaseday #EpilepsyFoundation

Week 5 – Fri 29th October
Create an event – Host a Halloween party, invite your friends and ask for a $20 donation
Tag us in your posts or hashtag #laforabodydiseaseday #laforahalloweennight #EpilepsyFoundation

We look forward to seeing your posts on Facebook

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https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png 0 0 Niki Markou https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Niki Markou2021-09-28 19:41:322021-09-29 03:02:21Lafora Body Disease Day & Awareness Month – October 1st
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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

  • Press Release: United Against Lafora, Families Worldwide Raise Awareness

  • New Resource: Lafora Anti-Seizure Medication Guidelines

  • Join in Lafora Body Disease Day 2026!

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  • Elpida Therapeutics’ Press Release

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  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

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info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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