Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

Text says 'Ask the experts: a q&a for Lafora families' over a white and gray hexagonal background.
This is a graphic with a headshot of Niki Markou smiling in the center. The background is a purple gradient.
Rare Genomes Project logo on top of a purple to white gradient

Partners

AILA
AEVEL Asociacion Espanola para vencer a la enfermedad de lafora
Asociacion CEL LUZ logo
Rare As One Chan Zuckerberg Initiative Proud member of the Rare As One Network
Rare Epilepsy Network Proud Member
Probably Genetic Logo
EveryLife Foundation
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