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Christine Kelly2024-03-06 09:00:292024-03-03 19:13:33Five Interns to Join Chelsea’s HopeFighting the Rare
A documentary about Lafora disease that features Chelsea’s Hope.
Living with Lafora
The Merriam family tells their story after a devastating diagnosis.
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Christine Kelly2024-02-28 19:01:102024-02-28 19:01:10Rare Disease Day 2024 Press Release
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Christine Kelly2024-02-19 13:56:432024-02-19 14:56:41Volunteer Spotlight: Camilla Translated Six Lafora Disease Resources from English to ItalianThe mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.

















