Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

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Probably Genetic Program: FAQs

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Text along the bottom of the square image reads: we are excited to announce our new partnership! The round Chelsea's Hope Lafora Children Research Fund logo is on the top left and the Probably Genetic logo is on the right.

Probably Genetic Partnership Announcement

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Fighting the Rare Documentary

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Watch Our Stories

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

Link to: Children of Chelsea’s Hope

Meet

Meet

The Children of Chelseas’s Hope

Link to: Newly Diagnosed

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The Lafora Families Community

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Partners

AILA
AEVEL Asociacion Espanola para vencer a la enfermedad de lafora
Asociacion CEL LUZ logo
Rare As One Chan Zuckerberg Initiative Proud member of the Rare As One Network
Rare Epilepsy Network Proud Member
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EveryLife Foundation
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