Home - Chelsea's Hope Lafora Children Research Fund

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Read Our Latest News

Lafora Bodies

Lafora Disease Science Terms 101

April 21, 2023

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Chelsea's Hope Lafora Children Research Fund Research Roundtable Thursday, April 27th, 10:30 am - 12:00 pm EST. Register to attend via Zoom We'll hear from Lafora Disease and Adult Polyglucosan Body Disease researchers around a common goal: reducing glycogen aggregation in the brain.

First Lafora Disease Research Roundtable

April 20, 2023

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Chelsea’s Hope Started a Volunteer Program

April 18, 2023

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Watch Our Stories

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

Meet

The Children of Chelseas’s Hope

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The Lafora Families Community

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Partners

AILA

Rare As One Chan Zuckerberg Initiative Proud member of the Rare As One Network

Rare Epilepsy Network Proud Member

EveryLife Foundation