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Niki Markou
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Niki Markou2021-11-03 22:03:442024-07-08 06:50:34We’re part of the @ChanZuckerbergInitiative’s #RareAsOne Network
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Chelsea Gerber
1990-2016
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
Lafora patient
Adela Richer
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Kelsey Anne Harris
1995-2014
Fighting the Rare
A documentary about Lafora disease that features Chelsea’s Hope.
Living with Lafora
The Merriam family tells their story after a devastating diagnosis.
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Niki Markou
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Niki Markou2021-11-03 22:03:442024-07-08 06:50:34We’re part of the @ChanZuckerbergInitiative’s #RareAsOne Network
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Christine Kelly
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Christine Kelly2023-07-14 13:55:262024-05-30 12:33:322023 Symposium Registration is Open Now!
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Niki Markou
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Niki Markou2022-06-22 18:50:342024-05-30 02:41:17Vibe Bio Launches To Transform Drug Development For Patients With Rare DiseasesPartners
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
