Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

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2023 Symposium Registration is Open Now!

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Probably Genetic Program: FAQs

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Probably Genetic Partnership Announcement

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Watch Our Stories

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

Link to: Children of Chelsea’s Hope

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The Children of Chelseas’s Hope

Link to: Newly Diagnosed

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Link to: Donate

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Partners

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AEVEL Asociacion Espanola para vencer a la enfermedad de lafora
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Rare As One Chan Zuckerberg Initiative Proud member of the Rare As One Network
Rare Epilepsy Network Proud Member
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EveryLife Foundation
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