Mariah founded the group with the intention of providing emotional support and resources for siblings of Lafora Disease patients. She wrote:

“As the sister of two Lafora Disease patients, I understand how isolating grieving a sibling can be. That’s why I founded the sibling support group with Chelsea’s Hope! I hope you will join us in this journey to support one another in our unique experience as siblings.”

Are you interested?

We need to know how many people to expect in the group as we plan. The first step is to please fill out the interest form. Mariah will contact you and add you to a group chat. Next, you can meet her in a low-stress, informal environment before deciding if you’d like to join the Zoom meeting with others. The primary language for the group sessions will be English, but everyone is welcome! We will have a chat with translation capabilities and will do everything we can so language is not a barrier to participation. Also, you can email Mariah with any questions about the group.

Watch a video explaining the Sibling Support Group.