Lafora Disease Sibling Support Group with Mariah Merriam

Interested in a Sibling Support Group?

Chelsea’s Hope is delighted to announce the relaunch of our sibling support group, led by Mariah Merriam, to build community between siblings of those with Lafora Disease.

Are you the sibling of someone with Lafora Disease? We encourage you to fill out the interest form and download this flyer with all the details about what to expect from the program.

Image of the Lafora Disease Sibling Support Group Flyer

Mariah founded the group with the intention of providing emotional support and resources for siblings of Lafora Disease patients. She wrote:

“As the sister of two Lafora Disease patients, I understand how isolating grieving a sibling can be. That’s why I founded the sibling support group with Chelsea’s Hope! I hope you will join us in this journey to support one another in our unique experience as siblings.”

Are you interested?

We need to know how many people to expect in the group as we plan. The first step is to please fill out the interest form. Mariah will contact you and add you to a group chat. Next, you can meet her in a low-stress, informal environment before deciding if you’d like to join the Zoom meeting with others. The primary language for the group sessions will be English, but everyone is welcome! We will have a chat with translation capabilities and will do everything we can so language is not a barrier to participation. Also, you can email Mariah with any questions about the group.

Watch a video explaining the Sibling Support Group.

Please note: The program is only for Lafora Disease siblings. You must be age 13+. Parents are welcome to fill out the interest form on behalf of their children.