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Chelsea's Hope Student Ambassador

Student Ambassador Applications Open

August 21, 2026/by Chelsea's Hope

Announcing a new program for student volunteers looking to support the Lafora community! If you are a current university student in the United States, consider applying for our Student Ambassador Program this fall. Student Ambassadors will be trained to host events on their campus to raise awareness and funding for Lafora disease research. Applications for the fall semester are open from now until 11:59 PM EDT on Tuesday, September 8th. Read more below about the initiative.

Apply Here


Student Ambassador Program Overview

The Student Ambassador program is a semester-long volunteer initiative that will be self-paced with guidance from our Scientific and Executive Director. Student Ambassadors will be responsible for developing an awareness and fundraising campaign at their university to support Lafora disease research and are expected to attend monthly group meetings. The student ambassador will become a liaison on their campus for the work being done at Chelsea’s Hope. Student ambassadors should expect to work an average of 10 hours per month on the project and set a fundraising goal of $250. The length of the program is one semester starting in September. Download the position description here.

Email katherine@chelseashope.org with questions.

https://chelseashope.org/wp-content/uploads/2026/08/Student-Ambassador-2026-.png 628 1200 Chelsea's Hope https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Chelsea's Hope2026-08-21 15:00:262026-09-03 13:21:29Student Ambassador Applications Open

About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

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Latest News

  • Press Release: United Against Lafora, Families Worldwide Raise Awareness

  • New Resource: Lafora Anti-Seizure Medication Guidelines

  • Join in Lafora Body Disease Day 2026!

  • Lafora Therapy Q&A Resources

  • Student Ambassador Applications Open

  • Social Security Added Lafora to Compassionate Allowances List

  • Elpida Therapeutics’ Press Release

  • ION283 to be Developed by Elpida Therapeutics

  • Update on the ION283 Program from Telethon

  • Introducing the Lafora Clinical Network Registry

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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