News & Blog
This proof-of-concept suggests that it would be beneficial to develop gene therapy for restoring malin expression in patients where malin is mutated or missing.
If you have questions about gene therapy and Lafora Disease, please feel free to contact our Science Director, Dr. Kit Donohue, at email@example.com.
If you want to read more about gene therapy, this is a good patient-friendly website.
If you have more questions about gene therapy and Lafora Disease, please feel free to contact our Science Director, Dr. Kit Donohue, at firstname.lastname@example.org.
Please join our new Science Director, Dr. Kit Donohue, for a community meet and greet. As Kit steps into her new role, she would like to hear from you – the patient community!
Kit has been fortunate to study in Dr. Matthew Gentry’s lab for the past five years, where she met and collaborated with many of the scientists seeking treatment for Lafora Disease. The progress that has already been made is a testament to what can happen when scientists work closely with the patient community.
Kit is excited to play a role in deepening that collaboration as we move closer toward the goal of finding a cure for Lafora Disease. We hope you will join and share your needs, questions, concerns, and hope for the future of our community.
When: June 29, 2022 06:00 PM in Eastern Time US and Canada. Registration before June 29, 2022 is required.
If you are unable to attend, would like to submit a question/thought ahead of time or privately, please email email@example.com.