***GRANT FOR LAFORA HOUSEHOLDS AWARDED; FORM CLOSED*** Dear Lafora Families, With funding from the Global Genes’ Continuity of Care RARE Patient Impact Grant, Chelsea’s Hope is offering grants to Lafora Disease Households impacted by COVID-19. Limited funds are available, but we hope to help as many patients as possible. The grant application deadline has now […]

Disorder: The Rare Disease Film Festival is a new event showcasing films from around the world which address the challenges of life with a rare disease. Most (but not all) of the films are documentaries. Many are less than 15 minutes. This year’s festival, scheduled for November 9th and 10th, will include Faces of Lafora, […]