Christine Kelly, Author at Chelsea's Hope Lafora Children Research Fund

About Christine Kelly

Christine joined Chelsea's Hope in June 2022 as a Marketing Fellow. In her current role as Communications and Development Director, she manages social media, the monthly newsletter, and the volunteer program. Christine also updates the website and would love to connect with you about sharing your story.

Entries by Christine Kelly

ION283 Safety Study Approved

August 14, 2024/by Christine Kelly

We just learned from Dr. Minassian that the FDA has approved the ION283 Safety Study! We are so grateful for your continuous support, for Dr. Minassian and his team at UTSW, Dr. Messahel, IONIS, and everyone involved for getting us here. Our patient community has been a driving force in supporting reaching this stage and […]

Announcing a 2024 T-Shirt Design Contest

August 2, 2024/by Christine Kelly

As part of our upcoming Awareness Campaign, we are excited to announce a t-shirt design contest! From now until August 12th, you can submit your designs to be considered. Our Board of Directors will vote on the winning design on August 13. Chelsea’s Hope is celebrating 15 years as a patient advocacy organization this year. […]

Empowering Lafora Disease Research: Launch of Patient Mutation and Canine Databases

May 15, 2024/by Christine Kelly

Hear from Emilie Heller about the launch of two databases she worked on: “Hi everyone! My name is Emilie and I’ve just wrapped up my time at Chelsea’s Hope as the Research Network Development Intern. I’m excited to share about the launch of two Lafora databases. Patient Mutation Database Our new Patient Mutation Database is […]

Reflecting on Progress: Explore Our Impact in the Chelsea’s Hope 2023 Annual Report

April 2, 2024/by Christine Kelly