Alexis’ Story in Local News
AC Cruz has been sharing her daughter Alexis Rodriguez’s story with local news outlets to raise awareness and funds while she faces Lafora disease. Read the news articles here:
Long Island teen battles rare disease that affects less than 100 people globally
News 12, Long Island
December 19, 2022
“A Freeport High School alumnus is suffering from a rare and terminal disease that only affects 80 people worldwide.” [Read more…]
Freeport Mom Opens Up About Daughter’s Rare, Terminal Illness
Jeremy Barmash, Patch
Freeport, NY
January 5, 2023
“A once vibrant girl from Freeport is battling a rare and fatal form of epilepsy.” [Read more…]
January 12, 2023
“Alexis Rodriguez, a 19-year-old from Freeport, is facing a difficult and uncertain future as she battles a rare and fatal form of epilepsy.” [Read more…]
Chelsea’s Hope c/o Dr. Donohue
Leave a Reply
Want to join the discussion?Feel free to contribute!