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Apply to Join the 2027 Board of Directors!

October 22, 2026/by Chelsea's Hope

Apply to join our Board of Directors for the 2027-2028 term by October 30th!

Members of the Chelsea’s Hope Board of Directors at the 2026 Symposium.

The Board of Directors meets monthly to review, plan, and distribute resources to further the organization’s mission, to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. Members of the Board of Directors may serve up to two consecutive terms in their respective positions. The next two-year term begins in January 2027.

Members of the Board of Directors are expected to:

  • Attend the monthly board meetings (of which four are mandatory)
  • Serve on at least one committee for the organization
  • Be willing to assist with special events at the organization, including but not limited to our Annual Symposium, Family Q&A Sessions, conference presentations, and fundraising events.

You can find more details about the responsibilities and duties of the Board of Directors HERE.

Application requirements

Apply to join the Board by October 30th. The organization will contact applicants in December with more information. Please fill out our Google Form and include your CV or resumé.

Are you interested?

Yes, I’m interested!
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https://chelseashope.org/wp-content/uploads/2026/10/CH-BoD-2026-Symposium-scaled.jpg 1940 2560 Chelsea's Hope https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Chelsea's Hope2026-10-22 09:47:582026-10-28 09:49:37Apply to Join the 2027 Board of Directors!
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About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

View Chelsea’s Hope Newsletter Archive 

Donate to Lafora Research

Latest News

  • Apply to Join the 2027 Board of Directors!

  • Press Release: United Against Lafora, Families Worldwide Raise Awareness

  • New Resource: Lafora Anti-Seizure Medication Guidelines

  • Join in Lafora Body Disease Day 2026!

  • Lafora Therapy Q&A Resources

  • Student Ambassador Applications Open

  • Social Security Added Lafora to Compassionate Allowances List

  • Elpida Therapeutics’ Press Release

  • ION283 to be Developed by Elpida Therapeutics

  • Update on the ION283 Program from Telethon

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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Link to: Press Release: United Against Lafora, Families Worldwide Raise Awareness Link to: Press Release: United Against Lafora, Families Worldwide Raise Awareness Press Release: United Against Lafora, Families Worldwide Raise AwarenessCoffee for Chelsea's Hope Lafora Children Research Fund September 24-October 8, 2026 Donate the amount of a coffee to fuel the fight against Lafora disease.
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