It is completely voluntary, but the more patients who participate, the better our understanding of the disease. Your involvement is so valuable! It is in English, so please use your own translation option if needed. Please help us spread the word and share the survey with other Lafora disease families.
About Chelsea’s Hope
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora Disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization.
Chelsea’s Hope, Post Office Box 348626, Sacramento, CA 95834