ASBMB Today

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Originally published by ASBMB Today on July 10, 2025.

This feature explores the biology of Lafora disease, research into therapies that reduce or remove abnormal glycogen, and the essential role of collaboration among researchers, patients, families, and Chelsea’s Hope.

Read the full article on ASBMB Today.

Patient Worthy

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Originally published by Patient Worthy on May 23, 2025.

This article profiles Chelsea’s Hope, the families affected by Lafora disease, and the community-led effort to support the ION283 safety study and advance urgently needed research.

Read the full article on Patient Worthy.

The Good News Movement

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Originally published by The Good News Movement on May 6, 2025.

This article highlights the ION283 human safety study and the international effort led by families, advocates, researchers, and Chelsea’s Hope to advance research toward a potential Lafora disease therapy.

Read the full article on The Good News Movement