Entries by Christine Kelly

Shining a light on Lafora disease for Rare Disease Day 2023

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We will show our stripes for Lafora disease on 2023 Rare Disease Day. SACRAMENTO, Calif. – February 27, 2023 – Chelsea’s Hope Lafora Children Research Fund, a 501(c)(3) nonprofit organization, wants to share stories of Lafora disease patients like Alexis Rodriguez to raise awareness about the ultra-rare epilepsy. Lafora Disease is a degenerative neurological condition […]

New article about Lafora disease

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READ ARTICLE: Role of Astrocytes in the Pathophysiology of Lafora Disease and Other Glycogen Storage Disorders  New from Dr. Jordi Duran! It’s a review on how the accumulation of glycogen in astrocytes, glial cells in the central nervous system, contribute to Lafora disease and other neurodegenerative conditions.

Our Social Media

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Connect with Chelsea’s Hope Lafora Children Research Fund across social media! We’re on Facebook, Instagram, Twitter, LinkedIn, TikTok, Threads, and YouTube. Give us a follow or a like, and engage with our content to help raise awareness! Interested in becoming a Lafora Disease advocate on socials? Contact christine@chelseashope.org for more information.