Entries by Christine Kelly

Announcing a Town Hall: Fully Funding the Safety Study

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We hope you will join us for a Zoom Town Hall next Wednesday, May 21st, at 4 p.m. ET, to discuss fully funding the safety study. Register to attend today! We have less than a month to fundraise to enroll the final four patients on the original timeline. Learn more about our fundraising initiatives and how […]

Safety Study Update – February 2025

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We are excited to share an update about the ION283 Safety Study: the team at UTSW can continue enrolling patients.  In December 2024, the first patient in the Lafora Disease Safety Study at the University of Texas Southwestern Medical Center (USTW) received their first dose of ION283, a treatment designed to halt disease progression. Last […]

Chelsea’s Hope Earns Platinum Seal of Transparency for 2025

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Chelsea’s Hope is excited to announce we’ve just earned a Platinum Seal of Transparency from Candid for 2025! We invite you to check out our nonprofit’s work through our Candid nonprofit profile; where you can view our impact. We rely on our profile to gather support; it enables funders and donors to find us and […]