Entries by Christine Kelly

Safety Study Update – February 2025

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We are excited to share an update about the ION283 Safety Study: the team at UTSW can continue enrolling patients.  In December 2024, the first patient in the Lafora Disease Safety Study at the University of Texas Southwestern Medical Center (USTW) received their first dose of ION283, a treatment designed to halt disease progression. Last […]

Chelsea’s Hope Earns Platinum Seal of Transparency for 2025

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Chelsea’s Hope is excited to announce we’ve just earned a Platinum Seal of Transparency from Candid for 2025! We invite you to check out our nonprofit’s work through our Candid nonprofit profile; where you can view our impact. We rely on our profile to gather support; it enables funders and donors to find us and […]

Chelsea’s Hope Welcomes 2025-2026 Board of Directors

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Chelsea’s Hope is pleased to announce the 2025-2026 Board of Directors: Jenifer Merriam (President), Dr. Katrina Voe Cotton (Vice President), Sheila Barter (Treasurer), Meredith Williams (Secretary), Niki Markou (At-Large Member), Roderick Howard (At-Large Member), and Nadia Ismail (At-Large Member). New to Chelsea’s Hope are Vice President Katrina Voe Cotton, MD, PhD, and At-Large Board Member […]

In Memory of Dr. Joan Guinovart

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We are deeply saddened by the loss on January 1st, 2025, of Professor Dr. Joan Guinovart — founder, former director, former researcher, and professor of IRB Barcelona, an international research center devoted to curing cancer and other diseases linked to aging. He was a brilliant scientist and a wonderful human being. Dr. Guinovart’s research was […]