Entries by Christine Kelly

Now Recruiting: ION283 Safety Study

The application packet for the ION283 safety study is now available! You can view the application as a PDF or download a Word document. Please read the email below from Dr. Minassian: “Dear Lafora disease patients and families, We are now ready to receive referrals for consideration for inclusion into the clinical trial: Safety and Efficacy of […]

Chelsea’s Hope Announces Launch of Advisory Board

As announced during our 15-year celebratory dinner, Chelsea’s Hope is pleased to share the launch of our Advisory Board. Chelsea’s Hope has a dedicated Board of Directors, staff, and volunteers who work to execute our mission. To accelerate our path to treatment and expand our capacity to serve families with Lafora, the Board nominated 11 […]