Entries by Christine Kelly

In Memory of Dr. Joan Guinovart

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We are deeply saddened by the loss on January 1st, 2025, of Professor Dr. Joan Guinovart — founder, former director, former researcher, and professor of IRB Barcelona, an international research center devoted to curing cancer and other diseases linked to aging. He was a brilliant scientist and a wonderful human being. Dr. Guinovart’s research was […]

Chelsea’s Hope Attended the 2024 Annual Meeting of the American Epilepsy Society

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Vice President Jenifer Merriam represented Chelsea’s Hope at two back-to-back conferences. From conversations with other leaders about improving organizational structure, to learning about the resources and knowledge available for the rare epilepsy community, it was a powerful event. 2024 Partners Against Mortality in Epilepsy (PAME) Conference The first day of the PAME conference, Jenifer joined […]

Now Recruiting: ION283 Safety Study

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The application packet for the ION283 safety study is now available! You can view the application as a PDF or download a Word document. Please read the email below from Dr. Minassian: “Dear Lafora disease patients and families, We are now ready to receive referrals for consideration for inclusion into the clinical trial: Safety and Efficacy of […]