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The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

FACE it Campaign

September 11, 2023/by Riley Hawkins

The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

On September 20th, 2023, Chelsea’s Hope will be joining Childhood Dementia Initiative in the FACE It campaign! September 20th is Childhood Dementia Day, meaning it’s the perfect opportunity to make childhood dementia Impossible To Ignore. We invite you to join by painting your face or having fun with make up. Together, we’ll draw attention to childhood dementia.

One of the most pressing issues regarding childhood dementia is that many people don’t know that it exists. It is a symptom of Lafora disease that eventually affects every patient, listed with others on our About Lafora Disease page. Childhood dementia affects an estimated 700,000 people, and sadly, most children with dementia pass away before their 18th birthday.

In the rare disease community, opportunities to share with friends, acquaintances, and peers outside of the community can be crucial. According to Dementia Australia, childhood dementia is caused by more than 100 different rare genetic conditions.

Spreading awareness helps families, researchers, and medical professionals in supporting patients and developing a cure.

Check out the Chelsea’s Hope social media accounts on September 20th, a.k.a. Childhood Dementia Day; we’ll share photos of us FACING it to raise awareness. Learn more about the FACE It campaign on Childhood Dementia Initiative’s web page.

Download our poster to share
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https://chelseashope.org/wp-content/uploads/2023/09/News-Post-Graphic.png 400 1200 Riley Hawkins https://chelseashope.org/wp-content/uploads/2022/02/ChelseasHope1.png Riley Hawkins2023-09-11 08:27:352024-03-27 07:06:49FACE it Campaign
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Title text on the left says 'upcoming webinars.' Below is a bullet point list of text that says 'Childhood Dementia Introduction Tue. 5th September 10:30 - 11:30 pm EST Accessing Emerging Treatments for Childhood Dementia Thu. 7th September 6 - 6:45 pm EST We Don't Fit Report Tue. 10th October 9:30 - 10:30 pm EST.' On the right text says 'hosted by: Childhood Dementia Intiative. Colorful ovals are in the top right corner and the Chelsea's Hope Lafora Children Research Fund logo is in the bottom right corner. Childhood Dementia Webinars
The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'. Chelsea’s Hope Joins FACE It 2024
The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'. FACE It to Raise Awareness of Childhood Dementia
Courage in Care: Lafora Caregiver Series Connection and Care: Childhood Dementia Presented By Kaitlin Baum, RN Protected: Connection in Care

About Chelsea’s Hope

Chelsea’s Hope began as a website in the fall of 2007 to share Chelsea Gerber’s story with family and friends. A 501(c)(3) organization since 2009, we have made an impact by raising awareness, connecting families worldwide, funding research, and maintaining hope.

Our mission is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. [Read More]

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The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

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Use ICD-10 code G40.C for Lafora.

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