Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

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MEET THE TEAM

Five Interns to Join Chelsea’s Hope

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I SUPPORT RARE DISEASE DAY 29 FEB 2024 #RAREDISEASEDAY RAREDISEASEDAY.ORG

Rare Disease Day 2024 Press Release

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Watch Our Stories

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

Link to: Children of Chelsea’s Hope

Meet

Meet

The Children of Chelseas’s Hope

Link to: Newly Diagnosed

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The Lafora Families Community

Link to: Donate

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Partners

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AEVEL Asociacion Espanola para vencer a la enfermedad de lafora
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Rare As One Chan Zuckerberg Initiative Proud member of the Rare As One Network
Rare Epilepsy Network Proud Member
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EveryLife Foundation
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