Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

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Carmen, Tracy, Christian - Giovanna Monda's children

Giovanna’s Story

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Image includes a purple rectangle in the background of top third. The Chelsea's Hope Lafora Children Research Fund research roundtable logo is towards the left of the rectangle in white. It has half a bullseye to the left of the text. To the right of the logo's text is a purple line. On the other side, white text says 'Thursday, 8 February 10:30 AM - 12 PM EST.' a darket purple line separates the purple background from the white hexagons that make up the rest of the image. Below that, white text on a purple oval says 'REGISTER IN ADVANCE.' The photo on the left is a headshot of Sharmistha Mitra, Ph.D. with text beneath her name that says 'UT Southwestern Medical Center.' The photo on the right is a headshot of Jeff Milton with text beneath his name that says 'La Jolla Labs, Inc.'

Announcing February Research Roundtable Speakers

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Image includes a purple rectangle in the background of top third. The Chelsea's Hope Lafora Children Research Fund research roundtable logo is towards the left of the rectangle in white. It has half a bullseye to the left of the text. To the right of the logo's text is a purple line. On the other side, white text says 'Thursday, 8 February 10:30 AM - 12 PM EST.' a darket purple line separates the purple background from the white hexagons that make up the rest of the image. Below that, white text on a purple oval says 'REGISTER IN ADVANCE.' The photo on the left is a headshot of Sharmistha Mitra, Ph.D. with text beneath her name that says 'UT Southwestern Medical Center.' The photo on the right is a headshot of Jeff Milton with text beneath his name that says 'La Jolla Labs, Inc.'

Help Lafora Patient Zaina and Family Evacuate Gaza

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Watch Our Stories

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

Link to: Children of Chelsea’s Hope

Meet

Meet

The Children of Chelseas’s Hope

Link to: Newly Diagnosed

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The Lafora Families Community

Link to: Donate

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AEVEL Asociacion Espanola para vencer a la enfermedad de lafora
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Rare Epilepsy Network Proud Member
Probably Genetic Logo
EveryLife Foundation
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