Leadership Team

Meet the people working daily to fight Lafora disease. Thank you to our Board of Directors, staff, Advisory Board and volunteers.

Board of Directors

Jenifer Merriam
President

Katrina Voe Cotton, MD PhD
Vice President

Meredith Williams
Secretary

Nadia Ismail
At-Large Member

Niki Markou
At-Large Member

Roderick Howard
At-Large Member

Sheila Barter
Treasurer

Staff

Kit Donohue, PhD
Scientific and Executive Director

Christine Kelly
Communications and Development

Mariah Merriam
Caregiver Registry Intern

Niki Markou
Director of Family Support

Advisory Board

Dr. Pascual Sanz

Valencia Institute of Biomedicine, CSIC

Dr. Roberto Michelucci

IRCCS Istituto delle Scienze Neurologiche di Bologna

Dr. Viet Nguyen

Chapman University

Dr. Souad Messahel

Elpida Therapeutics

Dr. Francesca Bisulli

University of Bologna

Dr. Berge Minassian

UT Southwestern Medical Center

Dr. Jose Serratosa

Fundacion Jimenez Diaz University Hospital

Dr. Matthew Gentry

University of Florida

Mr. Jeff Milton

La Jolla Labs

Dr. Jordi Duran

IQS Barcelona – Universitat Ramon Llull

Dr. Antonio Delgado-Escueta

David Geffen School of Medicine at UCLA