Leadership Team

Founded by families, there are now many people working daily to fight Lafora disease. Meet our Board of Directors, staff, and volunteers.

Board of Directors

</p> <div style="text-align:center;">Jenifer Merriam</div> <p>

Jenifer Merriam

President

</p> <div style="text-align:center;">Katrina Voe Cotton, MD PhD</div> <p>

Katrina Voe Cotton, MD PhD

Vice President

</p> <div style="text-align:center;">Sheila Barter</div> <p>

Sheila Barter

Treasurer

</p> <div style="text-align:center;">Meredith Williams</div> <p>

Meredith Williams

Secretary

</p> <div style="text-align:center;">Nadia Ismail</div> <p>

Nadia Ismail

At-Large Member

</p> <div style="text-align:center;">Niki Markou</div> <p>

Niki Markou

At-Large Member

</p> <div style="text-align:center;">Roderick Howard</div> <p>

Roderick Howard

At-Large Member

Chelsea’s Hope is also supported by an Advisory Board that meets twice yearly and offers guidance to the Board of Directors.

Meet the Advisory Board

Staff

</p> <div style="text-align:center;">Kit Donohue, PhD</div> <p>

Kit Donohue, PhD

Scientific and Executive Director

</p> <div style="text-align:center;">Christine Kelly</div> <p>

Christine Kelly

Communications and Development Director

</p> <div style="text-align:center;">Kait Fedor</div> <p>

Kait Fedor

Grants Coordinator

</p> <div style="text-align:center;">Sally Leung</div> <p>

Sally Leung

Research Support Intern

</p> <div style="text-align:center;">Sophie Stein</div> <p>

Sophie Stein

Research Support Intern

</p> <div style="text-align:center;">Sara Gerber</div> <p>

Sara Gerber

Research Support Intern

Volunteers

</p> <div style="text-align:center;">Mariah Carlson</div> <p>

Mariah Carlson

Western University of Health Sciences

</p> <div style="text-align:center;">Spencer Nguyen</div> <p>

Spencer Nguyen

Chapman University

</p> <div style="text-align:center;">Vaishali Jain</div> <p>

Vaishali Jain

UC San Diego

What is Lafora Disease
Donate to Lafora Research
About the Organization