Tag Archive for: noventia

IONIS Statement for the Lafora Community September 4, 2024

Ionis Statement for the Lafora Community

IONIS logoIonis shared a statement with Chelsea’s Hope for the Lafora community. They have agreed to license the ION283 program to Noventia Pharma, and Noventia will assume responsibility for developing it. 

The licensing of the ION283 program will not impact the Safety Study. That will continue as planned, and we will update our community as soon as enrollment is open on clinicaltrials.gov.

As a reminder, please sign up for our mailing list and indicate you want to receive “research updates” to receive this news as soon as possible.