Tag Archive for: awareness campaign

The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

FACE it Campaign

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The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

On September 20th, 2023, Chelsea’s Hope will be joining Childhood Dementia Initiative in the FACE It campaign! September 20th is Childhood Dementia Day, meaning it’s the perfect opportunity to make childhood dementia Impossible To Ignore. We invite you to join by painting your face or having fun with make up. Together, we’ll draw attention to childhood dementia.

One of the most pressing issues regarding childhood dementia is that many people don’t know that it exists. It is a symptom of Lafora disease that eventually affects every patient, listed with others on our About Lafora Disease page. Childhood dementia affects an estimated 700,000 people, and sadly, most children with dementia pass away before their 18th birthday.

In the rare disease community, opportunities to share with friends, acquaintances, and peers outside of the community can be crucial. According to Dementia Australia, childhood dementia is caused by more than 100 different rare genetic conditions.

Spreading awareness helps families, researchers, and medical professionals in supporting patients and developing a cure.

Check out the Chelsea’s Hope social media accounts on September 20th, a.k.a. Childhood Dementia Day; we’ll share photos of us FACING it to raise awareness. Learn more about the FACE It campaign on Childhood Dementia Initiative’s web page.

Download our poster to share