Read article: ‘The importance can’t be understated:’ Home Care Nurse shortage impacts local residents

“If nurses weren’t here, then she – I can say with pretty much absolute certainty – would not be here either,” Michele said.

Nurse care for a Lafora disease patient is so important, though not always accessible.

If your child needs 24/7 care, then having two people at home is a necessity. Michelle Ambroe was featured by her local news discussing the care her daughter, Jessica, needs because of Lafora disease.


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