Christine Kelly, Author at Chelsea's Hope Lafora Children Research Fund

About Christine Kelly

Christine joined Chelsea's Hope in June 2022 as a Marketing Fellow. In her current role as Communications and Development Director, she manages social media, the monthly newsletter, and the volunteer program. Christine also updates the website and would love to connect with you about sharing your story.

Entries by Christine Kelly

Chelsea’s Hope Started a Volunteer Program

April 18, 2023/by Christine Kelly

Updated Patient Contact Form

March 29, 2023/by Christine Kelly

Families! Please complete our updated patient contact form! It is important to keep our community connected and our families informed.

Update on Myozyme and Lumizyme drugs from Sanofi for Lafora Disease treatment

March 13, 2023/by Christine Kelly

Chelsea’s Hope continues to champion the development of effective Lafora disease (LD) therapeutics in both the research community and with interested companies. One recurring question is whether currently used therapeutics for other glycogen storage diseases could be used in LD. As you know, this would greatly benefit our community, allowing rapid therapeutic adoption. Because of […]

Shining a light on Lafora disease for Rare Disease Day 2023

February 27, 2023/by Christine Kelly

We will show our stripes for Lafora disease on 2023 Rare Disease Day. SACRAMENTO, Calif. – February 27, 2023 – Chelsea’s Hope Lafora Children Research Fund, a 501(c)(3) nonprofit organization, wants to share stories of Lafora disease patients like Alexis Rodriguez to raise awareness about the ultra-rare epilepsy. Lafora Disease is a degenerative neurological condition […]