Entries by Chelsea's Hope

Announcing June 18th ION283 Q&A: What’s Next?

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Questions about the ION283 Safety Study or what’s next?  We hope you will join us for a Zoom ION283 Q&A next Wednesday, June 18th, at 4 p.m. ET. Please register in advance to attend the meeting. While we have our FAQs, a lot has changed over the past year. We are so thankful that members […]

Chelsea’s Hope Advisory Board Meets to Discuss Research Goals

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The Chelsea’s Hope Advisory Board met in April to provide guidance and support for the organization’s clinical and research goals in 2025: Get the ION283 safety study fully funded Assist with the analysis and publication of collected data in order to drive biomarker development for Lafora disease and determine global prevalence rates Establish Clinical Centers […]