Lafora Disease Biomarker Workshop August 19th - 20th Hybrid event hosted by Chelsea’s Hope at UTSW Register Now to Participate

Announcing the Hybrid Lafora Disease Biomarker Workshop

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August 19-20, 2024 at UT Southwestern

Chelsea’s Hope is proud to partner with the UT Southwestern Medical Center (UTSW) in Dallas, Texas, to host a biomarker workshop. Our goal is to provide a platform for community education about the role of biomarkers in accelerating the path to clinical trials for Lafora disease. 

Lafora Disease Biomarker Workshop Biomarker 101 for families Patient sample collections Discussion panels Register Now August 19 - 20 Hybrid at UTSW

For Families

Have you ever wondered why we collect blood serum and CSF samples for our children with Lafora? Do you have questions about why patients undergo regular MRI scans? This workshop is designed to educate about how biomarkers can accelerate the path to therapy approval in clinical trials. Also, we want to learn which biomarkers are the most promising for use in treating Lafora disease. Above all, this knowledge will lead to a brighter future for our children. Please register to attend virtually.

For the Lafora Research Network

Clinicians and researchers, we will be sponsoring several expert discussion panels during the workshop to reach a consensus on protocols for sample collection and critical markers to track. Please register to be a part of the discussion for the topics below: 

  • Metabolic Biomarkers from Serum, CSF, and MRI/FDG-PET scans
  • Epilepsy & EEG Clinical Markers
  • Cognitive Evaluation & Markers
  • Motor Skill Evaluation & Markers


Questions? Please check out our FAQs section on our webpage. 



Register to attend virtually

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