Announcement: Ionis Pharmaceuticals

Dear Lafora Disease Community,

We have received a letter from Ionis Pharmaceuticals regarding the proposed clinical trials 2022.


This year has presented us with new challenges yet again.

Continuing to Hope…

We will never stop fighting for a cure. Our team is working tirelessly to uncover new ways to overcome our challenges. We will continue to update all of you as we receive more information.

To read the statement

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