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Christine Kelly2023-04-20 08:51:382023-06-22 15:23:21First Lafora Disease Research Roundtable
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Chelsea Gerber
1990-2016
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
Lafora patient
Adela Richer
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Kelsey Anne Harris
1995-2014
Fighting the Rare
A documentary about Lafora disease that features Chelsea’s Hope.
Living with Lafora
The Merriam family tells their story after a devastating diagnosis.
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Christine Kelly2023-04-20 08:51:382023-06-22 15:23:21First Lafora Disease Research Roundtable
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Christine Kelly2023-04-18 10:16:282023-04-18 10:16:28Chelsea’s Hope Started a Volunteer Program
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Christine Kelly2023-03-13 13:07:142023-03-14 07:22:47Update on Myozyme and Lumizyme drugs from Sanofi for Lafora Disease treatmentPartners
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
