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Christine Kelly2023-02-24 08:06:372023-03-14 07:25:25New article about Lafora disease
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Chelsea Gerber
1990-2016
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
Lafora patient
Adela Richer
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Kelsey Anne Harris
1995-2014
Fighting the Rare
A documentary about Lafora disease that features Chelsea’s Hope.
Living with Lafora
The Merriam family tells their story after a devastating diagnosis.
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Christine Kelly2023-02-24 08:06:372023-03-14 07:25:25New article about Lafora disease
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Christine Kelly2023-02-27 16:09:252023-03-14 07:25:09Shining a light on Lafora disease for Rare Disease Day 2023
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Christine Kelly2023-03-13 13:07:142023-03-14 07:22:47Update on Myozyme and Lumizyme drugs from Sanofi for Lafora Disease treatmentPartners
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 non-profit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
