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Riley Hawkins
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Riley Hawkins2023-10-04 12:58:082023-10-27 14:22:48Board Secretary Announcement
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Chelsea Gerber
1990-2016
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
Lafora patient
Adela Richer
Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.
In Memoriam
Kelsey Anne Harris
1995-2014
Fighting the Rare
A documentary about Lafora disease that features Chelsea’s Hope.
Living with Lafora
The Merriam family tells their story after a devastating diagnosis.
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Riley Hawkins
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Riley Hawkins2023-10-04 12:58:082023-10-27 14:22:48Board Secretary Announcement
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Christine Kelly
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Christine Kelly2023-09-28 12:18:172023-09-28 12:20:38Raise Awareness for Lafora Disease on Lafora Body Disease Day 2023
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Christine Kelly
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Christine Kelly2023-09-22 15:09:362023-09-28 12:23:56Announcing ICD-10 Codes for Lafora DiseasePartners
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
