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Mari Brackin’s Parent Diary: December 2012

 

I last updated in March of this year. Things haven’t changed all that much except for her weight and ability to talk. Most of the time, it’s like playing charades trying to figure out what she is saying. From a size 22 a couple years ago to a size 4, 5ft 8in., 105 lbs now, Elisa is a shell of her former self in more ways than one.

I hope the coming year brings us all some peace and joy, AND A CURE!!!!

Mari and Tom Brackin

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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