Connect with Chelsea’s Hope Lafora Children Research Fund across social media! We’re on Facebook, Instagram, Twitter, LinkedIn, TikTok, Threads, and YouTube. Give us a follow or a like, and engage with our content to help raise awareness!
Interested in becoming a Lafora Disease advocate on socials? Contact christine@chelseashope.org for more information.
We are so excited and grateful to share that, in partnership with the University of Texas-Southwestern, we’ve received a Chan Zuckerberg Initiative grant to advance Lafora disease research. The project is titled Closing the Knowledge Gaps in Lafora, a Fatal Neurodegenerative Disease.
Connecting researchers to the patient community
Engaging patients in research
Opening the path to therapy
AmazonSmile is ending February 20, 2023.
AmazonSmile is ending on February 20, 2023.
“To help charities that have been a part of the AmazonSmile program with this transition, we will be providing them with a one-time donation equivalent to three months of what they earned in 2022 through the program,* and they will also be able to accrue additional donations until the program officially closes in February.”
“A direct connection between scientists and the community helps ensure the science is being as efficient as possible and addressing the direct needs of the patient community.”
This piece features our Science Director, Dr. Kit Donohue (quoted above)! It explores recent challenges in rare disease research, and how decentralized, autonomous organizations (DAOs) like Vibe Bio creates can help in our journey to finding Lafora disease treatments.
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
