Calling all People and Caregivers in the Lafora Disease Community: We need your help!

Take a survey to help better understand what it’s like living with Lafora disease (LD) and to help guide development of new potential LD therapies.

Learn more here: Calling All People and Caregivers

A Special Song for Angelina

Just Like A Butterfly by Niki Markou

“Just Like A Butterfly” Audio Release Date: February 10th, 2021, available on multiple digital music platforms like Spotify, Apple Music & TikTok. We ask you stream the song and also make a donation! Help save our children.

“This journey has been extremely difficult and devastating and we do not want to lose our beautiful girl. I have written a song that is about how she bounces back from her seizures and what I wish for her ” – Mother, Niki Markou

Our Story