Home - Chelsea's Hope Lafora Children Research Fund

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Creating Awareness
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Read Our Latest News

G40.C Lafora progressive myoclonus epilepsy new ICD-10 code effective oct. 1, 2023 Providers, please use this new ICD-10 code for Lafora Disease.

Announcing ICD-10 Codes for Lafora Disease

September 22, 2023

Image of the Lafora Disease Sibling Support Group Flyer

Interested in a Sibling Support Group?

September 13, 2023

The background is bright yellow. On the left is a child with blue face paint. To the right is another child, who has red, white, and black face paint on, Between the children, the text reads, 'FACE it To make childhood dementia impossible to ignore'.

FACE it Campaign

September 11, 2023

Watch Our Stories

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

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The Children of Chelseas’s Hope

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