Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Read Our Latest News

Text says 'ION283 Safety Study ASO Therapy for Lafora Disease' over a background image of the Dallas, Texas, skyline

Now Recruiting: ION283 Safety Study

Read more
Five members of the Chelsea's Hope Board of Directors smiling and standing together.

Apply to Join the Board of Directors!

Read more
BECAUSE WE HAVE HOPE Lafora Holiday Season Auction 2024

Announcing Holiday Season Auction

Read more
SIGN UP FOR OUR EMAIL LIST

Watch Our Stories

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

Link to: Children of Chelsea’s Hope

Meet

Meet

The Children of Chelseas’s Hope

Link to: Newly Diagnosed

Join

The Lafora Families Community

Link to: Donate

Donate

To Lafora Research

Partners

AILA
AEVEL Asociacion Espanola para vencer a la enfermedad de lafora
Asociacion CEL LUZ logo
Rare As One Chan Zuckerberg Initiative Proud member of the Rare As One Network
Rare Epilepsy Network Proud Member
Probably Genetic Logo
EveryLife Foundation
vibe
Skip to content