Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Chelsea Gerber
1990-2016

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

Lafora patient
Adela Richer

Creating Awareness,
Connecting Families,
Funding Research,
Maintaining Hope.

In Memoriam
Kelsey Anne Harris
1995-2014

Fighting the Rare

A documentary about Lafora disease that features Chelsea’s Hope.

Living with Lafora

The Merriam family tells their story after a devastating diagnosis.

18 June 2025 wednesday Register online to attend the Zoom meeting. ION283: what's next? Q&A Submit your questions beforehand.
Chelsea’s Hope Advisory Board Meets to Discuss Research Goals
Town hall To discuss fundraising efforts and plan as a community. FULLY FUND THE SAFETY STUDY21 MAY 2025 WEDNESDAY Southwestern William P Clements Jr. U Register online to attend the Zoom meeting.

Partners

AILA
AEVEL Asociacion Espanola para vencer a la enfermedad de lafora
Asociacion CEL LUZ logo
Rare As One Chan Zuckerberg Initiative Proud member of the Rare As One Network
Rare Epilepsy Network Proud Member
Probably Genetic Logo
EveryLife Foundation
vibe