A Mother’s Perspective on the Benefits of a Feeding Tube for Lafora Disease Patients Has your child got a Gastrostomy tube, or have you been advised they will need it? It is a very daunting decision to make as you are still grieving from the devastating diagnosis and watching your child change so rapidly. Take […]

Hear from Emilie Heller about the launch of two databases she worked on: “Hi everyone! My name is Emilie and I’ve just wrapped up my time at Chelsea’s Hope as the Research Network Development Intern. I’m excited to share about the launch of two Lafora databases. Patient Mutation Database Our new Patient Mutation Database is […]

Research Simplified for Families Interested in learning about the new research developments in Lafora disease in a concise and easy-to-read form? Keep reading for summaries of some of the latest published research in Lafora disease. Our goal is to make the research easier to read and understand for families. You’ll find the research simplified in […]