Lena Ismail

At-Large Board Member

Lena Ismail was initially secretary on the board of directors but thanks to her dedication and passion to Chelsea’s Hope she gained her title as Executive Director after acquiring the Chan Zuckerberg Grant (CZI) to advance rare disease research.

She served as Chelsea’s Hope’s Executive Director for the last three years; with the end of the RAO program, Lena is transitioning out of her role as Executive Director and is planning to serve on the Board of Directors where she can continue to support the Lafora disease community and Chelsea’s Hope.

lenaismail@chelseashope.org