Christophe Lucas is the president of Epilepsie France and also a bereaved father of Mathys who had Lafora disease. He is still a strong advocate for the children of Lafora disease in France and around the world and has made many changes to the way children are tested and diagnosed in France.
The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.
Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382
Chelsea’s Hope c/o Dr. Donohue
976 Maywick Dr.
Lexington, KY 40504
Use ICD-10 code G40.C for Lafora.
