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An infographic that includes half a circle of Lafora Disease in the center and half a circle beneath with text that says 'What is Lafora disease? Also called Lafora progressive myoclonus epilepy, it's a rare neurodegenerative glycogen storage disease that is terminal.' Around the circle, symbols and text explain more about the disease. The text says 'childhood dementia, palliative care to treat symptoms, increasingly severe seizures, affects an estimated 200 people worldwide, genetic condition, no cure, healthy children develop symptoms around puberty, ataxia: loss of muscle control.

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments.

Chelsea’s Hope Lafora Children Research Fund is an IRS 501(c)3 nonprofit organization. EIN: 27-1008382

Location imageChelsea’s Hope c/o Dr. Donohue

976 Maywick Dr.

Lexington, KY 40504

info@chelseashope.org

Use ICD-10 code G40.C for Lafora.

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