Open Positions

Seeking At-Large Board Members

The Board of Directors includes 5-9 individuals who meet monthly to review, plan, and distribute resources to further the organization’s mission.

The mission of Chelsea’s Hope is to improve the lives of those affected by Lafora disease and help accelerate the development of treatments. The organization’s leadership team is fully remote, with some conference travel.

Apply to join our Board of Directors!

Members of the Board of Directors may serve up to two consecutive terms in their respective positions. Each term is two years long, so new members would serve January 2026-December 2027.

Eight members of the Chelsea's Hope Board of Directors and staff smiling and standing together.

Apply to join the Board by Monday, December 1st. The organization will contact applicants in December with more information. Please fill out our Google Form and include your CV or resumé.

Members of the Board of Directors are expected to:

  • Attend the monthly board meetings (of which four are mandatory)
  • Serve on at least one committee for the organization
  • Be willing to assist with special events at the organization, including but not limited to our Annual Symposium, Family Q&A Sessions, conference presentations, and fundraising events.
Apply here