Tag Archive for: zoom

Lafora Therapy Town Hall Join us to discuss future treatment options and plan as a community. 28 october 2025 tuesday Register online to attend the Zoom meeting.

Announcing Lafora Therapy Town Hall

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Lafora Therapy Town Hall Join us to discuss future treatment options and plan as a community. 28 october 2025 tuesday Register online to attend the Zoom meeting.

 

Questions about what therapies are next for the Lafora community? We are hosting a Lafora Therapy Town Hall to discuss what treatments the community can rally behind to bring from pre-clinical studies to clinical trials for our children.

Join us next Tuesday, October 28th, at 11 am PDT via Zoom.

As Lafora patient organizations – Chelsea’s Hope, Cel-luz, France Lafora, A.I.L.A. – we want to be united in our message and pursuit of treatment.

It’s been a worldwide effort to fund the safety study / phase 1 trial for ION283 at UTSW. We’ve been working towards it for years. If our patient community is going to bring another therapy forward, we must be unified in our next steps.

Families and caregivers, we hope you will be able to attend this event. Your voice matters!

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18 June 2025 wednesday Register online to attend the Zoom meeting. ION283: what's next? Q&A Submit your questions beforehand.

Announcing June 18th ION283 Q&A: What’s Next?

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Questions about the ION283 Safety Study or what’s next?  We hope you will join us for a Zoom ION283 Q&A next Wednesday, June 18th, at 4 p.m. ET.

Please register in advance to attend the meeting.

While we have our FAQs, a lot has changed over the past year. We are so thankful that members of the UTSW team will join us at the Q&A to share what they know. Please submit questions through this form by Monday, June 16th, for Dr. Minassian and Dr. Messahel to review them before the meeting.

Chart showing 6/10 patients enrolled in the ION283 safety study and 7/10 patients funded

Six patients have been enrolled in the ION283 Safety Study. We have funded the seventh participant and need to raise more for the final three children to join.

We will use Zoom’s closed caption translation feature. Please do not hesitate to join us in the ION283 Q&A or submit a question for us to ask if your first language is not English.

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Town hall To discuss fundraising efforts and plan as a community. FULLY FUND THE SAFETY STUDY21 MAY 2025 WEDNESDAY Southwestern William P Clements Jr. U Register online to attend the Zoom meeting.

Announcing a Town Hall: Fully Funding the Safety Study

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We hope you will join us for a Zoom Town Hall next Wednesday, May 21st, at 4 p.m. ET, to discuss fully funding the safety study. Register to attend today!

We have less than a month to fundraise to enroll the final four patients on the original timeline. Learn more about our fundraising initiatives and how you can get involved when you join our Town Hall next week.

Six out of 10 patients have been enrolled in the ION283 Safety Study.

We will use Zoom’s closed caption translation feature. Please do not hesitate to join us if your first language is not English.

Wondering about what’s next for ION283 development? Check our ION283 Safety Study FAQs and stay tuned for more information about a Q&A in June. We will not discuss that next week; we will focus on fundraising planning.

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