What is Lafora?
Lafora Overview
The Researchers
Scientific Articles
About Chelsea’s Hope
Chelsea’s Story
About the Organization
Board of Directors
Leadership Team
The Children of Chelsea’s Hope
News
Lafora Family Forum
Contact
Donate
Menu
Board of Directors
Frank Harris, Ph.D
President
Sheila Barter
Treasurer
Dani Goldsmith
Patient Community Representative
Jenifer Merriam
Parent Lead & Research Director
Niki Markou
Marketing and Communication Director
Jessica Macedo
Science Liaison
Alan Barter
Technical Director
Kim Rice, M.D.
Parent Representative
Linda Gerber
Former Executive Director and Co-Founder
K.T. Waxman, DNP, RN
Past President
Nadia Ismail
Patient Community Representative
Kim Marino
Social Media Director
Scroll to top